coeliac disease

[eagleydo]

<blockquote id="quote" class="ffs">quote:Originally posted by sam2112
Just been diagnoised with coeliac disease, does anyone have any info on where to eat, this is a stab in the dark but i've been trying to find out on line, but not enough info [msnsad]
it's a gluten free diet, hopefully someone out there has some info
thanks in advance
[/quote]
Hi, my niece was diagnosed with coeliac disease a few years ago. Know exactly what you mean about info of what to eat etc.We all had to find as much info as we could via the internet etc. In the UK, SAINSBURYS are very good as they have a gluten free range. Will send you an email later tomorrow with as much info as I can. She also went to Florida after being diagnosed and I will speak to her about where to eat etc.
Jan

[blott]

Our local Sainsbury's have a large section of gluten free products. Disney will also provide special dietary meals in their restaurants with 24-48 hours notice. You can also purchase gluten free products in health food shops both in the UK and Florida.

[fiona]

All the major UK supermarkets will supply you with a list of gluten free product that they sell if you ask. Also try your health shops - it is more expensive but there are products out there!

Publix have a section of gluten free product, and as many of the others above have said, Disney are very good. Fast food is difficult, but steak and salad (or meat or fish) is easy in plenty of restaurants.

[Jo]

Hi Sam,

Don't panic - it's really not as bad as it sounds. I was diagnosed 5 years ago ,and my 10 year old doiagnosed shortly afterwards.

Contact CoeliacUK www.coeliac.co.uk

Loads of info on food - even a book which lists what manufactured food you can and can't eat - although supermarket labelling is getting so much better. They also have local groups whic get together from time to time, and do food fayre etc.

We are in Berkshire - our local group is fantastic.

You should get lots of things on prescription - bread. pasta, pizza bases, biscuits.
Invest in a decent breadmaker and make your own - the bread is the worst thing but home made is fine.

As for Florida , it's really not too difficult, but get used to the fact that you don't get as many options before. I take flour with me and make rolls for the freezer when I get there - I'll give you a recipe / instructions if you like.

I find the buffet restaurants really good as you can see what you are getting - no surprises with things appearing smothered in mysterious sauces. Visit Chamberlains too , where the 17-92 crosses the 192 - it's a real treasure trove. I got so many goodies there I was really able to enjoy some treats on holiday. You can always have a big Mac no bun - and they don't hink you are mad in the states - they even have a button on the til which says ' No carbs' . Thank the atkins diet for that.

We always go self catering now, it's so much easier being in charge of your own food. Book yourself a villa if you haven't already.

I'll Dm you my phone number - ring me for a chat. The early days are the worst , when you don't think you can eat anything nice. There is loads you can it , you just need someone to point out whats Ok for you.

It's important you don't start the GF diet unitl you have had a biopsy , or you won't get a definite diagnosis.

Don't worry - you are going to feel so much better - changing your diet will be worth it.

Jo

[Calamity Jane]

This forum never fails to amaze me, If I had been in your shoes Sam I would also be feeling down and in despair with regard to what to eat or not, well done Jo ( and everyone else) for putting Sam's mind at ease. I am sure I worked with a lady a few years ago who had this. ( am I right in saying it is pronounced "Cee-liac" ??) I know she brought her own food to work and was very careful with her diet.

Good luck Sam, with all this help you will be fine.

[gromit]

You can order a gluten free meal on most airlines too - BA definately but i'm sure the others do too.

[Jo]

GF meals are available on the airlines, but it is hit an miss as to whether or not they actually make it onto the right plane.

We missed a connecting flight last weeek , but my GF meal managed to catch it, so I was meal less when we eventaully got a flight.

The time before that I was bumped off. For the money they were offering it was worth forgoing my meal.

I look at it as a bonus if the meal turns up on the right plane.

I usually eat at the airport (every airport seems to have a mcdonalds or burger king!) and take some snacks with me.

As a coeliac you get used to always having something in your handbag. Sam are you a male or female Sam? You may need to get a handbag!

Jo

[Tracey K]

Hi Sam
People here have already told you alot - feel free to DM me and I can contact you directly to talk about it more if you want some help and advice.

Hubby is a coeliac - you can get a lot of gluten free items on prescription from your doctor - flour, fresh bread, pizza bases, biscuits, pasta etc etc (you would need to purchase a prescription season ticket which will save you a lot of money). There are also ranges of Gluten free food in Sainsburys, Tesco, Asda as well as some great places over the internet (we have cornish pasties, sausage rolls, battenburg cake, cookies etc etc). It is also worth getting the breadmaker because then your bread tastes like real bread.

When we go to the states we always take some bread with us - we have never had any issue with customs over this. If you eat at Disney (eg character breakfasts etc) the chefs are amazing - even if you tell them as you sit down they will make you waffles and all sorts. They are very knowledgeable, you get personal treatment and we always learn something new everytime (even though hubby has had it all his life!)

Out of Disney the food in Orlando is generally great. You may have to watch the sauces or eat the burger without the bread but you should be able to eat really well whilst you are there.

Finally, Virgin are the only flight we have always had gluten free meals as ordered - therefore I would suggest that you take a snack in your handluggage just in case. Be warned though, Virgin will always serve you salmon, you always get strawberries in your dessert and you never get the little chocolate (can't remember what you get in it's place though).

Feel free to contact me - it's really a lot easier than you think once you know what you are looking for.

[sam2112]

Thanks for all the info guys, had another biopsy on Monday [not cool] [msnsad], seem to be having lots of tests this weather, have found a range of foods in Tesco only thing is most of it sweet things and the occasional small loaf of bread, baxters soup is great but when i go back for more there's none left very annoying.
Any food lists would be so much appreciated tried Tesco and Iceland neither could supply a list

[sam2112]

meant to say quite chuffed i can still have a wee chardoney