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Thread: coeliac disease

  1. #1
    Florida Newbie
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    Sep 2004
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    coeliac disease

    Just been diagnoised with coeliac disease, does anyone have any info on where to eat, this is a stab in the dark but i've been trying to find out on line, but not enough info [msnsad]
    it's a gluten free diet, hopefully someone out there has some info
    thanks in advance
    Sam


  2. #2
    Gold 5 Star Member
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    In the UK, all Gluten Free food is clearly marked as such. I did not particularly look for the mark in the US, but I am sure that food sold in Publix & Winn-Dixie will be similarly marked. If you are going out to eat in a restuarant, make sure that the wheat containing products (bread, bun, rolls, pastries, pies etc) can be Gluten free. Gluten Enteropathy is now well recognised and I am sure that most major restaurants will be prepared for requests for gluten-free meals. If you are going out, ring the restaurant and speak to the manager beforehand to be absolutely sure.

    The problem, of course, will be when you have to eat impromptu, like while visiting a Theme Park. You may not be able to 'tuck into a burger' like the rest of us can when hungry. The mainly youthful staff at smaller outlets may not be knowledgeable in such matters and you will be wise to making alternative arrangements - like taking your own food into the park.
    Nostromo


  3. #3
    Florida Expert
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    Hmm....this is a stab in the dark too! Long time since I studied dietetics but you should be getting some good information from your doctors? In general gluten included products tend to be the things with thickening agents in, so flour, bread, potatoes, pasta that type of thing? I dont think you are going to find places to eat that are specifically useful but I do think that you should find that labelling on foods in the supermarkets is quite helpful.
    Im sure there should be a coeliac society that can give you good info.
    Like with all these things, information is the name of the game, Im sure you will find someone with better knowledge than that.
    Best advice of all I think.............keep your chin up!!!![msnsmile2][msnsmile2][msnsmile2]
    Dawn


  4. #4
    Gold 5 Star Member
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    A lot of companies like Juvela that make Gluten Free foods like Pasta and cakes are multinational and you should have no difficulty in finding outlets in Orlando that sells them. It might save you time to check before you go.
    Nostromo


  5. #5
    Gold 5 Star Member
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    Are you looking at Disney or orlando in general??

    If its Disney, contact Guests services with your requirements and they should be able to help.

    If its orlando in General, could you eat from a buffet type restaurant??

    That way you could pick what you wanted to eat.

    I know that it will be difficult for you and frustrating.

    Its found in processed foods rather than Vegetables and meats etc isn't it??
    [chatter][chatter][chatter][chatter][chatter][chatter][chatter]
    Andrew & Diane Moore


  6. #6
    Florida Newbie
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    Sep 2004
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    I am finding it very hard in the UK finding the right food, i feel like i've been living on Baxters soup for the last four weeks, i was hoping the US were more clearly marked then here, i shall certainly take your advise and call ahead to see if the restaurant can accomodate

    Sam


  7. #7
    Florida Newbie
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    Sep 2004
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    Doctor mmmmmmmm took them 5 years to suss this out, basically said this is what you have, change your diet, no other info, been left to get on with it,
    think i'll go private fed up with it
    Sam


  8. #8
    Florida Expert
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    thought it sounded familiar [msnwink]

    http://www.orlando-guide.info/forums...hTerms=coeliac

    http://www.orlando-guide.info/forums...hTerms=coeliac

    plus page 1 of

    http://www.orlando-guide.info/forums...hTerms=coeliac

    plus search for gluten free is giving further results [msnwink]
    tezz 7628


  9. #9
    Florida Newbie
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    Sep 2004
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    thanks Tezz, shall read this in bed tonight, finding it hard to concentrate tonight watching farenheight 9/11, what a wally [if you know what i mean]
    Sam


  10. #10
    Super Moderator caroline's Avatar
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    Calabay Parc, Florida & Purley, Surrey
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    Hi Sam

    If you want to eat in any of the Disney resort restaurants you can call ahead for reservations or special dietary needs, call (from UK)001 407 939 3463
    Caroline & Dave



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